THE JHARKHAND STORY NETWORK
Ranchi, June 19: On World Sickle Cell Awareness Day, Chief Minister Hemant Soren took centre stage at a UNICEF-organised programme to interact with young people living with sickle cell disease. Highlighting the state government’s dedication, he emphasised Jharkhand’s commitment to controlling the condition and improving patient outcomes through collective action.
A Comprehensive Strategy to Improve Lives
In a strong affirmation of the administration’s approach, the Chief Minister stated, “Efforts are being made to provide better treatment and a good quality of life to those affected by sickle cell.” Recognising that the disease impacts not only individuals but their entire families, he called for widespread support from all sectors of society to eliminate the disease from Jharkhand.
Early Screening: A Priority for Prevention
A key highlight of the programme was the push for enhanced screening. The Chief Minister noted the invisibility of sickle cell carriers: “People do not even know they are suffering from this illness; they may pass it to the next generation unknowingly.” He urged that newborn screening be mandated, enabling early diagnosis and prompt treatment. Extensive testing and counselling for those displaying symptoms was stressed as essential to breaking the cycle of transmission.
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Strengthening Infrastructure and Data Systems
CM Soren outlined state-led initiatives to combat sickle cell through the health department, in partnership with organisations such as UNICEF. With significant reforms in progress, he revealed that “health profiles of people are being prepared to identify and treat those afflicted with various diseases.” He delegated a periodic update of these health records, explaining that up-to-date data would inform effective resource allocation, measure treatment success rates and monitor the emergence of new cases.
Removing Barriers to Care and Treatment
The Chief Minister also instructed the Health Department to ensure seamless delivery of testing, medication and blood transfusions for patients. Recognising the chronic nature of the disease, he underscored the critical necessity for “medicines to be easily available on time.” This directive aims to ensure that no patient suffers due to a lack of access to essential care.
Empowering Health Counsellors as Frontline Advocates
Emphasising the role of trained counsellors, CM Soren said, “The role of health counsellor is very important in screening and counselling”—particularly for genetic disorders like sickle cell. He urged the provision of adequate training and tool kits to enable counsellors to identify early signs of genetic conditions and deliver appropriate guidance and support to families.
“Carry on with Strength and Courage”
In heartfelt conversations with affected youth—Ms Atiya Kausher, Ms Sneha Tirkey, Ms Sanya Parveen, Mrs Vimala Kumari and Mr Abdul Hakim Ansari—the Chief Minister listened with empathy. One student shared she often misses college and exams due to her condition. CM Soren responded with reassurance, encouraging her to “continue your studies—you will find a solution.”
Addressing the broader patient community, he urged “do not get discouraged; carry out your daily activities with full strength and courage.” He reiterated that sickle cell ought not to be labelled a “disease”, but rather a manageable condition that can be overcome with timely care, openness and perseverance.
Looking Ahead: A Vision of Eradication
Reiterating his administration’s objectives, CM Soren reaffirmed the state’s pledge to “give a healthy and safe life to the coming generation.” He called on government agencies, civil society, health professionals, families and affected individuals to unite in pursuit of a future free from sickle cell.
